About Me

My name is Kelly and I live on the outskirts of London with my partner Tim, my daughter Eleanor and our little black cat Phoebe.
In 2015 Eleanor was diagnosed with a brain tumour following a rapid decline in her vision and our entire world was turned upside down.

I started this blog initially for me, as a kind of diary, a place to write down my thoughts and feelings, but over time it evolved and I chose to share it in the hope it may help people to understand or even help others in a similar situation.

To read my blog from the beginning please click here

Blog Entries

A fork in the road…

March 17th, 2021|Comments Off on A fork in the road…

5 years….

January 8th, 2020|Comments Off on 5 years….

Flu Season…

December 31st, 2019|Comments Off on Flu Season…

When Christmas comes early!

December 22nd, 2019|Comments Off on When Christmas comes early!

Stage Life…

December 21st, 2019|Comments Off on Stage Life…

3rd Line…

December 2nd, 2019|Comments Off on 3rd Line…

Barely time to breathe…

September 2nd, 2019|Comments Off on Barely time to breathe…

Opportunity Knocks!

August 2nd, 2019|Comments Off on Opportunity Knocks!

Plants with a purpose…

June 3rd, 2019|Comments Off on Plants with a purpose…

One door closes…

May 30th, 2019|Comments Off on One door closes…

And then she was 8…

March 24th, 2019|Comments Off on And then she was 8…

Superheroes…

January 8th, 2019|Comments Off on Superheroes…

Back to School…

September 6th, 2018|Comments Off on Back to School…

September is…..

September 1st, 2018|Comments Off on September is…..

Surgery…

May 18th, 2018|Comments Off on Surgery…

I know…

February 4th, 2018|Comments Off on I know…

One Step Forward…

January 24th, 2018|Comments Off on One Step Forward…

3 years later…

January 8th, 2018|Comments Off on 3 years later…

Prepare…

October 9th, 2017|Comments Off on Prepare…

A lump in the road…

February 13th, 2017|Comments Off on A lump in the road…

730 days & counting…

January 8th, 2017|Comments Off on 730 days & counting…

5 going on 15…

January 8th, 2017|Comments Off on 5 going on 15…

A fond farewell…

December 12th, 2016|Comments Off on A fond farewell…

DIPG…

August 4th, 2016|Comments Off on DIPG…

Reality check…

August 2nd, 2016|Comments Off on Reality check…

Today…

June 4th, 2016|Comments Off on Today…

Small Victories!

April 11th, 2016|Comments Off on Small Victories!

The Purple Gala Ball…

February 28th, 2016|Comments Off on The Purple Gala Ball…

Acceptance…

February 1st, 2016|Comments Off on Acceptance…

365 days later…

January 8th, 2016|Comments Off on 365 days later…

Keep your hair on!

November 4th, 2015|Comments Off on Keep your hair on!

Limbo…

November 3rd, 2015|Comments Off on Limbo…

Hair today…

September 1st, 2015|Comments Off on Hair today…

What goes up…

August 20th, 2015|Comments Off on What goes up…

Bibbidi Bobbidi Boo…

August 13th, 2015|Comments Off on Bibbidi Bobbidi Boo…

Magic!

August 12th, 2015|Comments Off on Magic!

Ed…

August 11th, 2015|Comments Off on Ed…

Another bump in the road…

July 4th, 2015|Comments Off on Another bump in the road…

Time for a little break.

May 30th, 2015|Comments Off on Time for a little break.

Scanxiety…

May 2nd, 2015|Comments Off on Scanxiety…

Life is a rollercoaster…

April 25th, 2015|Comments Off on Life is a rollercoaster…

Thank you!

April 15th, 2015|Comments Off on Thank you!

Magic button day!

January 15th, 2015|Comments Off on Magic button day!

And so it begins…

January 9th, 2015|Comments Off on And so it begins…

A trip to Moorfields…

January 5th, 2015|Comments Off on A trip to Moorfields…

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