None of these are ideal. She has endured back to back chemo treatments and her body is tired.
Tim and I have always seen radiotherapy as a last resort. The long and short term side effects are quite terrifying and as Eleanor would require full craniospinal treatment her entire brain and spine would be radiated. The side effects are vast and some are permanent.
We were sent away to make a decision after reading up on the chemotherapy, chatting to a radiotherapy specialised oncologist and a meeting set up to talk to a neurosurgeon at St Georges hospital.
Once we are armed with all of the available information we will set up another meeting with Eleanor’s oncologist and get things moving.
We are very aware time is not on our side, the longer we take to make this decision the more chance her tumour has to grow leaving us at a disadvantage and potentially causing a further decrease in her vision.